Oh, these videos offer a glimpse into our life......most everyone thinks that having a little with a trach is our big deal. It is....but we have just as big of a deal with food allergies.
Pray for a cure!!! This is so difficult, but there is so much hope that one day my kids can leave the home without worrying.....worrying about touching milk in a pew in church that dripped out of a baby bottle, which could cause my kids’ face to swell if they touch it and then their face......worrying about touching grocery carts that may have dairy or peanuts on them......afraid to play at playgrounds if there are others eating there.....asking me a zillion times if “this food is okay”........even though I have checked the label, a zillion times.
I don’t ask for pity.....just understanding that food allergies can really be that bad.....and we need a cure.